Tuesday, April 23, 2013

Your Turn

Allergic to gluten?


79 comments:

  1. Nope. I'm allergic to peanuts and all nuts. If I eat peanuts, you must haul my ass to a hospital STAT or I will kick the bucket.

    ReplyDelete
  2. I still don't know what that is so I'm guessing no.

    ReplyDelete
  3. Gluten intolerant. I feel like a completely different person off gluten. Things you would never think could be related to something you have eaten everyday of your life. Achy joints, back pain, restless sleep, irritability...etc, etc.

    ReplyDelete
  4. Nope. I'm carb addict.

    ReplyDelete
  5. I am allergic to gluten. Just found out a month ago. It is so difficult to get off gluten.

    I'm a basic person. So I like simple things. Sandwich wraps, turkey sandwiches, yogurt, cereal.

    So going gluten free at home is so hard for me.

    ReplyDelete
  6. I have celiac disease. Its not an allergy, its an autoimmune disease caused by ingesting gluten. There is a thing called wheat allergy thats also triggered by many of the same foods, but has quite different symptoms. I have to be on the stupid gluten free diet for the rest of.my life becauseil if i ingest anything with gluten I'll suffer extreme fatigue, dizziness, and a host of other neurological symptoms. Thanks to f'ing Goopy making people think the gluten free diet is just a Hollywood fad, I have to pay 6 dollars for a small loaf of bread. I ABSOLUTELY DESPISE THAT CUNT!

    ReplyDelete
    Replies
    1. Where?! Cause I pay $13 but its fantastic bread! I'm allergic to gluten but also happens I'm celiac. Isn't life grand?

      Delete
  7. My nutritionist thinks I am --I have a ton of food allergies and eliminating gluten is the hardest one--I seem to crave breads, and unfortunately most gluten free things have other things I am allergic to.

    ReplyDelete
    Replies
    1. Yeah once you start doing the elimination dance you find out all the OTHER stuff you did not know your body was reacting to. Yikes-kinda challenging.

      Delete
  8. Nope, Codeine and the Flu shot.

    ReplyDelete
  9. Good God no! The economy in my country is going to hell, so we are now getting poorer quality (less gluten) wheat. It is having a horrible effect on my baking: it's like cooking with cement instead of wheat.

    ReplyDelete
    Replies
    1. That is upsetting. I just read Great Britain's wheat crop failed and their Wheatbix supplies were short. Are you in Turkey? (Duh!) Which part? I just made a new friend on FB from there.

      Delete
  10. Not that I know of. I love carbs and starch

    ReplyDelete
  11. While there are definitely people with legitimate gluten issues, it has become such a trend lately. I find it hilarious that there are some people who think that anything gluten-free is healthier than the regular version and pay a small fortune for a dense loaf of bread, which is actually LOADED with calories.

    ReplyDelete
    Replies
    1. You are totally right there Cathy. It is another crap science trend like nonfat and low sugar. PROCESSED FOODS are the problem!!

      Delete
  12. I have huge digestive issues-and may very well be gluten intolorant, but too much effort to find out. Lol

    ReplyDelete
    Replies
    1. Watch the movie Fat, Sick & Nearly Dead. It gave me & Hobbit Hubby the tools to try a juice fast. My IBS went quiet in two days, I stopped feeling hungry in three days. Went 7 weeks on the juice fast, shed 40 lbs & kept it off. Dropping the gluten & processed foids took longer & is still a struggle-restaurants are my true addiction! We just started our third serious fast (second was only 10 days due to travel schedule)

      Delete
    2. This is about 18 months after the first long fast and we've moved TWICE including emigrating to Canada after nearly goung bankrupt due to medical insurance hike after Hobbit Hubby retired. We are SO READY for this juice fast. In less than 24 hours my joint pain dropped by 60% or so and the virus causing a horrid sore throat for three weeks just seemed to fade out.

      YOU CAN DO IT. Just give the juice fast a one week trial. I had help from the Hobbit Hubby but now am almost well enough to do it myself. I used to be bedridden pretty much 24/7 in excruciating pain in my gut and every joint in my body, with weeks long back & sciatic butt spasms. I KNOW it sounds outrageous that it could all clear up in days but it DID.

      Delete
    3. Sophia- isn't it crazy how your cravings normalize after a few days off sugar and wheat?

      Delete
    4. That's really inspiring Sophia. Going to check it out!

      Delete
    5. @Sarah: yeah-the SILENCE from not being hungry anymore was just a revelation. My overly busy brain went really calm. So cool!

      @H: I had a LOT of support, and it is quite the learning curve. But it has been soooo worth it. Hobbit Hubby didn't wanna do it right away but I told him we either have to buy me new clothes in a too big size or get 20lbs off me so I can wear all the smaller clothes that have been waiting for round two. So excited-sick to DEATH of these raggedy fat clothes. But I had to prove to myself I could stabilize my weight til I was ready for the next stage. Over a year and my weight never bounced more than five lbs higher. An unprecedented accomplishment. But I LOOK 100 lbs lighter because the swelling in my face is gone.

      Delete
  13. My roommate has really bad reactions, though hasn't been diagnosed as celiac. (@scratchy kitty, she has reactions very similar to yours.) She's done a lot of research and found that the primary test used for diagnosis can miss diagnosing it due to variations.

    I gave it up in part to decontaminate the kitchen for said roomie, but after seeing some of the info in the book Wheat Belly and this article, ugh. No thanks. Since I went off it, my skin has cleared up considerably.

    ReplyDelete
    Replies
    1. I think I read about some more recent, more accurate tests. But at tjis point my body gives me VERY clear signals. Just can't walk. Motivating to cut out the treats lemme tell ya. You can't just cut down to clear gluten from the digestive tract. You just gotta prevent it from getting in at all. Takes 30-90 days to completely clear out. SUCKS BALLS. But worth it.

      Delete
  14. BTW, coconut flour kicks all sort of ass as a wheat flour substitute, though obviously it's not quite the same. :)

    ReplyDelete
  15. not allergic, but I suffer from IBS, Irritable Bowel Syndrom. I have started this new LOWFOD map diet. I can't process certains types of sugars and gluten is something to stay away from on this diet. I soooo miss carbs but feel soo much better since eating on this new diet.

    ReplyDelete
  16. I have Celiac disease.

    ReplyDelete
  17. Ohhhhhh yeah. 30 YEARS of weird ass symptoms. I felt horrible and everyone, including me, thought I was cwazy. Guess what?? All roads led to gluten/grain/processed food sensitivities. It is a real challenge to get the diet all cleaned up-and did you know gluten is in toiletries, cleaning supplies, and pills? It is really ENDLESS. But after two years of experimenting and doing juice fasts and strange dietary changes and clearing the clutter in my pill box & cleaning supplies, my IBS is gone, my joint pain & whacko moods are down to a dull roar, and my MS-stricken Hobbit Hubby is feeling WAY better too.

    All that marketing crap and bandwagon jumping about 'gluten free' is turning a very serious chronic progressive threat to health ibto a big fat joke which is tragic! I lost 30 years of my life to this nonsense and I hate to think how many others are suffering needlessly. It started early and crept up on me-the boiling frog scenario. Finally a nutritional coach helped me figure it out. I am eternally grateful! I am getting my LIFE back!

    Now if I can just figure out what to do to heal up after the brain injury in 1999. I am on the teail for thst as well, now that I can get out of bed.

    Gluten poisoning is NO JOKE folks. Check out youtube. It was a rwal eyeopener for me. I am so relieved that there is an exolanation but I kinda resent the $100K I spent/wasted on useless/clueless/misguided/cruel/quack doctors and the maybe $500K in lost income & lack of retirement savings as a result. It is late to play catch-up but I am determined to put tge wheels back on the wagon and get going. It is never too late to have my fairytale ending.

    ReplyDelete
    Replies
    1. SophiaB, that's a rough road you've been down. Glad your better. Added gluten poisoning, you tube to my research list.

      Delete
    2. Yup. It has been quite the horror show. I didn't even mention the worst parts, and won't to spare you nice peeples. But let's just say the learning journey has been amazing, I am feeling beyond blessed, and I have been given some massive gifts out of all of it. I WOULD change a few things if I had the choice but I cannot complain about where I've gotten to. I am purty dang proud of me, Hobbit Hubby, family & friends. The worthwhile ones hung in there and I can just thank my lucky stars for so many healing angels in my life.

      Delete
  18. I just ate an entire bag of crackers. So....no?

    ReplyDelete
  19. Nothing diagnosed, but I am having digestive problems that I suspect are related to gluten or wheat. I don't eat a lot of bread, but I love me some pasta!

    ReplyDelete
  20. Good luck with everything Sophia. My BFF has celiacs and it's challenging to say the least when we travel and stay together. She bakes a lot of her own food and keeps things in her purse just in case. She suffered for many years before finally being diagnosed.

    ReplyDelete
    Replies
    1. Thanx @califblondy. Travelling is toughest. But i am gonna figure that out b/c i am taking thus show ON THE ROAD. Too many sick friends... gonna be hitting the Bay Area to teach what I am learning with some friends. Weeklong retreats to return health into our own hands. Am pissed off as all hell and using it to fuel the fire! Will wave in passing...

      Delete
  21. No, but I became lactose intolerant at 50.

    ReplyDelete
  22. Mom, sister, aunts, uncles- all positive for celiac. Me, not yet (or ever I hope).

    ReplyDelete
  23. Yes, gluten intolerant but not Celiac. If I eat anything with gluten, my skin breaks out into terrible dry/itchy patches, my nose runs constantly and I get terrible headaches. I freaked out when I first found out (about a year ago) but have come to terms with my diet now. I just have to be really smart about eating out and learn to make the goodies I miss so much at home instead. Not so bad.

    ReplyDelete
  24. no but lately having issues with dairy:(.

    ReplyDelete
  25. @SophiaB: It is a real challenge to get the diet all cleaned up-and did you know gluten is in toiletries, cleaning supplies, and pills? It is really ENDLESS.

    Yes, I did know. It's awful.

    I believe the research that gluten (wheat in general) is a low-level inflammatory to everyone, not just anyone exhibiting outward signs, and especially since wheat was bred (er, no pun intended) as a superfood in the mid-80s.

    I don't think it's crap science trend (actually, I don't think low-processed-sugar is a crap science trend, either), but I do think going 'gluten-free' as a way to lose weight in and of itself without making informed decisions about what ELSE one is eating... now that it dumb and faddish.

    ReplyDelete
  26. And let me echo @Agent**It's sentiments re: being glad your health is much improved. I too will need to look for the video you recommended.

    ReplyDelete
    Replies
    1. Thank you so much-both of you. I also found the film Food Matters to be well done & helpful.

      Delete
  27. I'm pretty sure I am, I had an acute gallbladder attack in my mid twenties (after a really fun week drinking and food bingeing at a casino) that left me with some sudden onset allergies.
    I thought it was just a dairy allergy but I am still having symptoms and have to get the celiac testing.

    ReplyDelete
  28. Soy is my poison. Also allergic to milk and chocolate.

    ReplyDelete
  29. When I first went off gluten, just to try and see if it would make a difference, it was a Monday morning.
    By Tuesday night, my jeans were almost falling off me due to abdominal swelling going down so much. So, while I do not believe I have celiac or a major allergy, I do know that I am definitely sensitive to gluten, and I try my best to stay away from it as much as I can. And I LOVE bread and all kinds of baked goods. LOVE THEM! But it's not worth the bloating most of the time.

    ReplyDelete
    Replies
    1. When I show a photo of 'before and after' to medical professionals, they guess I have shed 40-80lbs. The shocker is, the before photo is after I shed 40lbs. And the after is after 6 months of following a gf diet, having shed a grand total of TWO lbs. The look on their faces is priceless. Great educational tool.

      Delete
  30. @joymama - I am sensitive to soy as well. Too much makes my boobs hurt. True story.

    ReplyDelete
  31. I'm not allergic to anything...but bullshit.

    ReplyDelete
  32. did you know gluten is in toiletries, cleaning supplies, and pills?

    I had no idea. I have a cold and went to CVS to get some more cold meds yesterday and picked up a bag of cough drops that was labeled GLUTEN FREE and was thinking, WTF??? I thought it was one of those gimmicky labels, like FAT FREE on foods that never, ever contained fat anyway.

    ReplyDelete
  33. Hey, plugging the CDAN Forums. :D I posted a new thread about gluten-free recipes and recommendations :)

    @nevermindthat: 'bullshit' what?

    @Mango: yep, wheat flour's a cheap binder in pills, etc. Amazing where it turns up.

    ReplyDelete
  34. I have been thinking of trying to give up gluten for a week, to see if I'm allergic. It's easier to do in Seattle than anywhere I know, but the lure of bread is still strong. :(

    ReplyDelete
    Replies
    1. Seachica, i lived in Renton & Issaquah for about 18 months. Seattle is so cool. I miss it though I now live just east of Vancouver in a farm town above Bellingham. It IS easier to deal w/dietary changes in large towns full of collwge students. The health food stores (Madison Market!) are pretty awesome there. I lived in San Francisco for 11years & the Bay Area for a total if 20. But it is Seattle I miss most.

      Delete
  35. I have a genetic disease called Ehler Danlos Syndrome that makes me prone to gluten intolerance, and SERIOUSLY messes up my GI system (I was hospitalized for severe vomiting 6 times since September). While yes, those who think it's a form of losing weight are annoying, I do love that there are SO MANY gluten free options now, and that is partly because the Hollyweirdoes providing a market for them. I was at a farmers market recently, and a woman was there selling homemade gluten free pasta and ravioli, and she said she created the recipe for her daughter with celiac years ago, and started selling when people started to ask "Are you gluten free?" in that ridiculous voice that is also used for "What is the carbon footprint on your root vegetables?"

    ReplyDelete
    Replies
    1. @Elizabeth: i have a strong suspicion I have EDS too. Went to see a geneticist but wasn't able to find enough family history. It is a really awful condition. Sending you healing energy. Good support for 'zebras' on Facebook if you look. I learned LOT from the bendies.

      Delete
  36. My GI told me to get off gluten 2 years ago after so many hospitalizations and dropping down to 80 lbs. I had not had gluten since then, and my symptoms mostly resolved, but I got a little tipsy this weekend and decided a few pieces of bread wouldn't hurt, and I was up until 2 am with some heinous cramps and dry heaves.
    The best way to be gluten free is just give up the baked goods entirely instead of using gluten free subs. When I have to cave, I like the brown rice based pastas and tortillas. I miss the heck out of pizza, though.

    ReplyDelete
  37. I have celiac disease. If I have a 1/8th of a teaspoon of gluten from asshats who lie about it being in food, I break out into bleeding scabs all over my arms, back, and chest that last for EIGHT MONTHS. I have to take the dangerous drug Dapsone, the same drug given to lepers, to clear it up any faster.

    So if you're going to be a dick who makes fun of gluten intolerance and celiac disease like it's in our heads, I guess you have no problem with us laughing at you for your serious and real medical conditions like cancer, diabetes, etc.

    Fuck. I'm so sick of the discrimination and the laughter. And people thinking it's funny to feed me gluten to prove it's all in my head.

    ReplyDelete
    Replies
    1. Wow. Just WOW. My mind reels. I am SO SO SO sorry to hear that people treat you like that. My heart is hurting for you. <3

      Delete
  38. As Selena is to Beaver, I am to white flour. Celiac with an untamed addiction to bagels and baguettes.

    ReplyDelete
  39. I have a wheat/gluten intolerance but not celiac. I went gluten free. I went gluten free about two months ago due to a doctor recommendation. It was pretty hard. Gluten is in nearly everything. Soy sauce, pill binding. It sucks because I'm constantly having to research what I'm about to eat but it has helped me immensely. I feel better, sleep better and I can definitely tell when someone slips me some wheat accidentally, I get cramps almost immediately. It's crazy how quickly my body began to heal once I cut wheat out of my diet.

    ReplyDelete
  40. No, but corn is no longer a friend to my intestine. Diverticulitis. Ugh.

    ReplyDelete
  41. Mild allergy for wheat, stronger allergy for yeast, but no gluten intolerance. I'll get itching if something ends up having wheat, hives if there's yeast, but I don't end up poleaxed.

    ReplyDelete
  42. I am so sorry to read about so many being so ill and the sacrifices that must be made to feel well blessings on all of you!

    ReplyDelete
    Replies
    1. Thank you for your kindness & concern. I was not expecting to comment so much on this thread, but it is really nice to just TALK about it with people who are open, considerate, interested, and knowledgable.

      Delete
  43. Not a trend or fad, its because the wheat we are eating is not the wheat of our grandparents generation. It's been genetically modified to grow shorter and thicker to get a better yield. Read Wheat Belly, i will need eat that poison again!

    ReplyDelete
  44. Not a trend or fad, its because the wheat we are eating is not the wheat of our grandparents generation. It's been genetically modified to grow shorter and thicker to get a better yield. Read Wheat Belly, i will need eat that poison again!

    ReplyDelete
  45. I have fibro and IBS. Leaving white starchy foods and sugars alone seems to really help my pain and digestive issues. I rarely eat wheat flour.

    I prefer oat,coconut,sorghum,brown rice over the wheat ones. I find they keep my weight down better as a carb choice too over wheat things. My new obsession is quinoa. My kids like it too.

    ReplyDelete
    Replies
    1. Wish I could have grains but I can't. Coconut yes. Thank GOODNESS as I am a coconut freak.

      Delete
  46. No, don't read Wheat Belly. It's a big pile of rubbish. Do your own research rather than believe some asshat who cites research studies and then either misquotes them or gets their findings completely wrong, while promoting his opinions as gospel.
    Does celiac exist? Yup. Are a fair number of people allergic to or sensitive to wheat? Yes. Is gluten bad for most of us? Until more definitive proof is provided, the answer is a resounding NO.

    ReplyDelete
    Replies
    1. @WBotW: can you cite a source for your statement? I am not a medical pro or researcher-just uymbling along and finally having some major relief from many awful symptoms. Would welcome your take on why I am getting so much better after so many years if it is NOT gluten?

      Delete
  47. Yes, as I can't eat anything with wheat. That allergy developed in the mid-1990s.

    ReplyDelete
  48. Yup just found out I have.celiacs disease. I've been sick forthis almost 2makes yrs and have gone to countless drs who.dismissed my symptoms and basically told me it was in my head and that I just needed to go for a walk to feel better. One dr actually accused me of being a drug seeker. I was the one that actually figured out that it might be gluten and had my dr test me and it came back positive. I never will be able to eat gluten ever again. I do not want to suffer like I did for 2 yrs.

    ReplyDelete
    Replies
    1. @BostonGirl: so few doctors have any nutritional know how. Self diagnosis or help from more holistic or tradition-based nutritional support folk is more likely. Good for YOU that you figured it out. Two years is a longass time to suffer!!

      Delete
    2. @sophiaB thanks I know exactly what u r saying and am looking at acupuncture to help also. There is this treatment called NAET acupuncture. I've done it in the past when I lived.in FL it's not cheap but it really helps. Look it up its really amazing. http://www.naet.com/ it might help other ppl too.

      Delete
  49. No, really, don't read Wheat Belly. It's psuedoscientific claptrap. What a cardiologist thinks he knows about nutritional science is beyond me, and if you actually look at the diet he recommends, it's just Atkins without smoked meats. Really? Cutting out almost all carbs will help a person lose weight? What ground-breaking "research."

    My son has celiac disease, and for us, it's a really serious issue. He nearly died when he was six days old of an infection that was ultimately complicated by him having an autoimmune disorder. He had pneumonia before his first birthday. Children with celiac are three times more likely than their peers to die in childhood of all causes. Which admittedly doesn't make his risk super huge, since childhood mortality rates in North America are pretty low, but it's something I manage to worry about anyhow.

    I'm so sick of this gluten-free fad. Restaurants that advertise their "gluten free" menu in cross-contaminated kitchens. Friends swearing they know how to make gluten-free food for him, then acting like I'm crazy when they inevitably introduce a contamination issue. People telling me that of course they know what it's like, because they eat mostly gluten-free anyhow because "that stuff is poison," and then complain when I won't go to Ye Olde Burger Jointe with them if I have my son. And so on.

    While I do enjoy the profligate number of prepared gluten-free foods on the market now (look, honey, you can shitty food too!), I can't wait for the next big trend, so that people will move on to obsessing about something less likely to personally affect me.

    ReplyDelete
    Replies
    1. If you're ever in Texas or New York you should check out TU-LU'S gluten free bakery. It's certified gf and have dairy free and vegan options. They only use Bob's Red Mill flours. It's amazing!

      Delete
  50. Celuac is REALLY serious. I have been so messed up for so long, but I consider myself extraordinarily lucky to just be gluten sensitive. It can be lifethreatening to have celiac and I am so sorry that those folks are so clueless around your kid.

    Maybe I would describe it like the kids who are so allergic to shellfish or peanuts... but you must know better how to handle that. I cannot conceive.

    I have learned a boatload from all y'all on this thread!

    ReplyDelete